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Royalty and Historical  Porphyria
Charles VI the mad of France (1368-1422)
George III (1738-1820)
George III 1.asp
King George and Porphyria
Mad Monarchs

John "Robert III" Stuart (1337-1406), King of Scots
A Royal Pedigree


Specific Medical Care Needs for Porphyrics
Case Management for Home Infusion
Medic Alert
National Patient Air Travel
Ports & Picc IV Infusion


Nerves & Neurology

CNS Involvement & Neuropathy
Drugs Toxic to Nerves/Peripheral Neuropathy
Evaluation of Peripheral Neuropathy
Neuromuscular Porphyria Link

Polyneuropathy Differential Diagnosis

Outreach Services
Americans With Disability Act

Center for Patient Advicacy
Coping With Chronic Illness
Porphyria Family Village-University of Wisconsin
Social Security - Questions & Answers
Social Security Disability Questions & Answers

Porphyria Specialists
AMA Doctor Finder
Dr. Kenneth Astrin, PhD. - Mt. Sinai - Human Genetics

Dr. Joseph R. Bloomer, MD / University of Alabama /
Gastroenterology & Hepatology / Scientific Advisory Board of APF
Dr. Attallah Kappas, Professor / Researcher Rockefeller University  NYC
Porphyrin Heme Biology - Heme Oxygenase

Dr. Micheline Mathews-Roth, MD
Channing Laboratory  
Brigham and Women's Hospital, Boston/Harvard
Dr. WIlliam E. Morton, M.D. Ph.D [Porphyria Diagnostician]
Dr. Neville Primstone MD / Scientific Advisory Board of APF
Metabolic Liver Disease - University of California - Davis

Dr. Shigeru Sassa /ROckefeller Laboratory/ Heme Biosynthesis

Dr. Shigeru Sassa, Associate Professor Rockefeller University NYC
Regulation of HemeBiosynthesis

Dr. Kevin M. Smith DSc. - Porphyrin Chemistry - UC -Davis

Dr Herbert Bonkovsky
University of Connecticut


Descriptions of  Porphyria Types

AIP (washington University-St. Louis)
AIP - Acute Intermittent Porphyria -- Good Stats

ALA-D eng_pro.cfm?FB=20&Institut=284&lfd_Nr=26p
CEP - Congenital Erythropoietic Porphyria [CEP] - Gunther's Disease
EPP - Erthropoietic Protoporphyria [
EPP  - Protoporphyria

EPP  - Andre

HCP porph.htm#coproporphyria
HCP - Coproporphyria

PCT (Postgraduate Medicine)

PCT (Report by Matthew Sachs)
PCT - Porphyria Cutaneous Tarda [PCT] - New Zealand
The Porphyrias -  UK

Variegate Porphyria htm#variegate
VP - Variegate Porphyria
VP - Variegate Porphyria (2)
VP - Variegate Porphyria - University of Virginia


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