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Chemical Toxins & Porphyria
 
Biochemical  MS & Porphyria
www.faseb.org
 
Chelation Therapy
http://www.mall-net.com/mcs/chela.html
 
Cutaneous Heme Metabolis & Porphyrias
http://www.med.nyu.edu/Research/H.Lim-res.html http://www.ummed.edu/pub/m/mtaubert/FePorphyrin.html<
 
Disorders of Porphyrin Metabolism - Dr. Grace Ziem MD
http://www.mcsrr.org/factsheets/porphyri.html

Gulf War Syndrome
http://www.mcsrr.org/pressreleases/prgws94a.html

Heme Biosynthesis
http://ethesis.helsinki.fi/julkaisut/laa/kliin/vk/ mustajoki/molecula.html
 
Heme Oxygenase [Dr. Attallah Kappas/ Rockefeller Laboratory]
http://www.rockefeller.edu/labheads/kappas/kappas-lab.html



PCT & Carcinoma (Case Study)
http://www.cdc.gov/mmwr/preview/mmwrhtml/00000293.htm

Porphyrinogens,Porphyrins,and Porphyrias
http://nordx.mmc.org/testcat/procedure.asp?ProcedureID=30
 
Porphyria
http://www.mall-net.com/mcs/porphyria.html

Porphyria and MCS (Thompson)
http://www.environmentalhealth.ca/w97porphyria.html
 
Porphyria Research [Dr. Sassa - Rockefeller University]
http://www.rockefeller.edu/labheads/sassa/sassa-lab.html

Porphyria and Sickle Cell Anemia (Manchester UK)
http://www.rcsed.ac.uk/journal/vol44_2/4420015.htm
 
Sick Buildings
http://www.mall-net.com/mcs/sickbld.html

Toxic Hazards
http://www.atsdr.cdc.gov/toxfaq.html
 

Clinical Trials
 
Clinical Trials Database
http://clinicaltrials.gov/ct/gui/c/b
 

Diagnostic Testing

24 Hour Urine Porphyria Testing
http://www.rcpa.edu.au/pathman/porphyr4.htm

ALA Urine Testing
http://www.rcpa.edu.au/pathman/5aminola.htm
 
Common Laboratory Tests in Liver Disease
http://cpmcnet.columbia.edu/dept/gi/labtests.html
 
Index of Worldwide Porphyria Labs
http://www.leeds.ac.uk/ifcc/SD/porph/labindex.html
 
Laboratory Diagnosis in Porphyria
http://medic.med.uth.tmc.edu/path/00000884.htm#Dx

PBG Deaminase Red Blood Cell Testing
http://http://www.rcpa.edu.au/pathman/porphob2.htm

PBG Synthetase Red Blood Cell Testing
http://www.rcpa.edu.au/pathman/porphob3.htm
 
PCT [ Porphyria Cutaneous Tarda]- A Complete Overview
http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176100

Red Cell Porphyrin Testing
http://www.rcpa.edu.au/pathman/porphyr3.htm

Porphobilogen Urine Testing
http://www.rcpa.edu.au/pathman/porphobi.htm
 
Porphyria Family Village - University of Wisconsin
http://www.familyvillage.wisc.edu/lib_porp.htm

Porphyrin Faeces Testing
http://www.rcpa.edu.au/pathman/porphyr2.htm
 
Dr. Robert J. Desnick - Mt. Sinai - Porphyria DNA Research
http://www.mssm.edu/genetics/

Dr. Kenneth Astrin - Mt. Sinai - Porphyria DNA Research
http://www.mssm.edu/genetics/ *astrin.html
 

Skin Biopsy for Porphyria
http://www.rcpa.edu.au/pathman/skin_bio.htm

Uroporphyrinogen Decarboxylase Red Cell Testing
http://www.rcpa.edu.au/pathman/uroporph.htm

Dietary Information for Porphyrics
 
Dietary Pyramid
http://www.nal.usda.gov:8001/py/pmap.htm

 

Drugs & Porphyria

Antimicrobial Agents in Porphyria
http://www.uct.ac.za/depts/mmi/antibiot/porph.html
 
Dr. Michael Moore's Website-University of Queensland
http://www.uq.edu.au/porphyria/
 
Drug Reaction Feedback
http://www.uq.edu.au/porphyria/porfdbk.htm
 
South African Porphyria Drug List
http://www.uct.ac.za/depts/mmi/jmoodie/porphtml.html#Classification

 

General References
 
American Porphyria Foundation  [**$35.00 Access Fee]
http://www.enterprise.net/apf/
 
Canadian Porphyria Foundation, Inc.
http://www.cpf-inc.ca/
 
CIIN
http://ciin.org
 
Mayo Clinic Health Site
http://www.mayohealth.org/
 
Medscape http://www.medscape.com/Home/Topics/multispecialty/multispecialty.html
 
National Library of Medicine
http://www.ncbi.nlm.nih.gov/PubMed/
 
US National Library of Medicine
http://www.nlm.nih.gov/


European Porphyria Initiative:
Dr. George Elder
http://www.porphyria.europe.com

Dutch EPP
http://www.epp.info




 

 
Genetics & Porphyria



Genetic Study of AIP
http://ethesis.helsinki.fi/julkaisut/ laa/kliin/vk/mustajoki/molecula.html

Molecular Background of AIP
http://ethesis.helsinki.fi/julkaisut/ laa/kliin/vk/mustajoki/molecula.html

Structure of Porphyrins
http://www-medlib.med.utah.edu/NetBiochem/hi2a.htm
 
Online Mendelian Inheritance in Man
http://www3.ncbi.nlm.nih.gov/Omim/

Understanding Gene Testing
http://www.accessexcellence.org/AE/AEPC/NIH/index.html
 
Your Genes, Your Choices
http://www.ornl.gov/hgmis/publicat/genechoice/index.html