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2001 Bulletins

THE LATEST BULLETINS:

Including the Monthly PES Drug Update


December 2001 PES NEWSLETTER
  • FOCUS:

  • Depression in Porphyria
  • Perfumes and Sensitivity in Porphyria
  • Tingling, Numbness and PN in Porphyria
  • Dizziness as a CNS Porphyria Symptom
  • Malathion and the Porphyric

November 2001 PES NEWSLETTER
  • FOCUS:

  • Abdominal Pain as a Major Hepatic Porphyria Symptom
  • Porphyrinuria & Toxic Induced Porphyria
  • The Problem With Fabric Softeners for Porphyrics
  • Constipation-A Troublesome Porphyria Symptom
  • Struggling With Tiredness

October 2001 PES NEWSLETTER
  • FOCUS:

  • Preventive Therapy and Rates of Infusion
  • SSRIs and Hepatic Metabolism
  • Photosensitivity and the Cutaneous Porphyric
  • Toxic Chemicals, Environmental Laws and the Porphyric
  • Mental Change During Acute Porphyric Attacks
September 2001 PES NEWSLETTER
  • FOCUS:

  • Cognitive Abilities and Porphyria Progression
  • A Look at the New Anti-Inflammatory Drugs
  • Taking Precautions While Awaiting Diagnosis
  • Accessing Brain Fog and ANS
  • Autonomic Neuropathy in Relation to Porphyria
August 2001 PES NEWSLETTER
  • FOCUS:

  • Avoiding Phlebitis and Blood Clots During Treatment
  • Cause and Effect Relationships in Porphyria
  • Quality of Life and Chronic Smoldering Porphyria
  • ICD # for Porphyria
  • Headaches as a Manifestation of Porphyria
July 2001 PES NEWSLETTER
  • FOCUS:

  • Following Prescribed Medical Treatment
  • Numbness and Tingling in Hepatic Porphyrias
  • Explanations of the Neurological Effects of Porphyria
  • Effectively Managing Hepatic Porphyria
  • Abdominal Pain as a Major Hepatic Porphyria Symptom
June 2001 PES NEWSLETTER
  • FOCUS:

  • Quality of Life With Preventive Therapies
  • Touch A Caretakers Needed Specialty
  • Perfumes and Scented Household Products
  • Financing the High Cost of Porphyria Treatment
  • Foot Drag, Loss of Gait and Other PN Aspects
May 2001 PES NEWSLETTER
  • FOCUS:

  • Hyperpigmentation in Cutaneous Porphyrias
  • Enzymes and Porphyria
  • Drugs: What's in a name
  • Stress and Porphyria
April 2001 PES NEWSLETTER
  • FOCUS:

  • Human Genome Project
  • Hepatic Encephalopathy
  • Exposure to Hydrocarbons
  • Reviewing Pharmaceutical Packaging Slips
  • Pseudoporphyria

March 2001 PES Newsletter
  • Muscle Weakness in Porphyria
  • Increased Porphobilinogen in the Urine
  • Brain Fog and A.N.S.
  • Bulbar Paralysis
  • delta-ALA Porphyrin Urine Test
February 2001 PES Newsletter
  • Enzymes and the Heme Pathway
  • Liver Damage and Drugs in Porphyria
  • Hyponatremia and Porphyria
  • Diagnosis of Abdominal Pain in Acute Porphyria
January 2001 PES Newsletter
  • Porphyria Names
  • The Composition of Porphyrins
  • Symptomatology of the Porphyrinopathies
  • Porphyria Urine Testing Dynamics

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