Make your own free website on Tripod.com





TOPICS ON THIS WEBPAGE

ABCs of Porphyria
Chemical Toxins and Porphyria
Clinical Trials
Diagnostic Testing
Dietary Information for Porphyrics
Drugs and Porphyria
General References
Genetics and Porphyria
CLICK HERE
FOR THE FOLLOWING TOPICS

Royalty and Historical Porphyria
Specific Medical Care Needs for Porphyrics
Nerves and Neurology
Outreach Services
Porphyria Specialists
Descriptions of Porphyria Types






 
ABC's Of Porphyria
 
The Porphyrias - In Depth Review
http://www-medlib.med.utah.edu/NetBiochem/hi6.htm

Clinical Manifestations, Diagnosis and Treatment of Porphyria
http://www.medstudents.com.br/metdis/metdis3.htm
 
Cytochrome P-450
http://www.mall-net.com/mcs/p450.html

Metabolic Disorders - Porphyrias
http://www.medstudents.com.br/metdis/metdis3.htm

Names of Porphyrins
http://http://www-medlib.med.utah.edu/NetBiochem/hi2b.htm

NIDDK (Digestive Diseases) Porphyria Website
http://www.niddk.nih.gov/health/digest/
summary/porphria/porphria.htm


Painful Porphyria: Introduction to Deriree Lyon
http://pubs.acs.org/subscribe/journals/
mdd/v04/i04/html/MDD04DeptDiseases.html


Porphyria Pathology (Australia)
http://www.rcpa.edu.au/pathman/porphyri.htm

Porphyrins
http://www-medlib.med.utah.edu/NetBiochem/hi2.htm

Summary of Porphyria Syndromes
http://wsrv.clas.virginia.edu/~rjh9u/porphyria.html

Welsh Porphyria Website (Alana Adams)
http://www.dotpharmacy.co.uk/uporphy.html




Chemical Toxins & Porphyria
 
Biochemical  MS & Porphyria
www.faseb.org
 
Chelation Therapy
http://www.mall-net.com/mcs/chela.html
 
Cutaneous Heme Metabolis & Porphyrias
http://www.med.nyu.edu/Research/H.Lim-res.html http://www.ummed.edu/pub/m/mtaubert/FePorphyrin.html<
 
Disorders of Porphyrin Metabolism - Dr. Grace Ziem MD
http://www.mcsrr.org/factsheets/porphyri.html

Gulf War Syndrome
http://www.mcsrr.org/pressreleases/prgws94a.html

Heme Biosynthesis
http://ethesis.helsinki.fi/julkaisut/laa/kliin/vk/ mustajoki/molecula.html
 
Heme Oxygenase [Dr. Attallah Kappas/ Rockefeller Laboratory]
http://www.rockefeller.edu/labheads/kappas/kappas-lab.html



PCT & Carcinoma (Case Study)
http://www.cdc.gov/mmwr/preview/mmwrhtml/00000293.htm

Porphyrinogens,Porphyrins,and Porphyrias
http://nordx.mmc.org/testcat/procedure.asp?ProcedureID=30
 
Porphyria
http://www.mall-net.com/mcs/porphyria.html

Porphyria and MCS (Thompson)
http://www.environmentalhealth.ca/w97porphyria.html
 
Porphyria Research [Dr. Sassa - Rockefeller University]
http://www.rockefeller.edu/labheads/sassa/sassa-lab.html

Porphyria and Sickle Cell Anemia (Manchester UK)
http://www.rcsed.ac.uk/journal/vol44_2/4420015.htm
 
Sick Buildings
http://www.mall-net.com/mcs/sickbld.html

Toxic Hazards
http://www.atsdr.cdc.gov/toxfaq.html
 



Clinical Trials
 
Clinical Trials Database
http://clinicaltrials.gov/ct/gui/c/b
 



Diagnostic Testing

24 Hour Urine Porphyria Testing
http://www.rcpa.edu.au/pathman/porphyr4.htm

ALA Urine Testing
http://www.rcpa.edu.au/pathman/5aminola.htm
 
Common Laboratory Tests in Liver Disease
http://cpmcnet.columbia.edu/dept/gi/labtests.html
 
Index of Worldwide Porphyria Labs
http://www.leeds.ac.uk/ifcc/SD/porph/labindex.html
 
Laboratory Diagnosis in Porphyria
http://medic.med.uth.tmc.edu/path/00000884.htm#Dx

PBG Deaminase Red Blood Cell Testing
http://http://www.rcpa.edu.au/pathman/porphob2.htm

PBG Synthetase Red Blood Cell Testing
http://www.rcpa.edu.au/pathman/porphob3.htm
 
PCT [ Porphyria Cutaneous Tarda]- A Complete Overview
http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176100

Red Cell Porphyrin Testing
http://www.rcpa.edu.au/pathman/porphyr3.htm

Porphobilogen Urine Testing
http://www.rcpa.edu.au/pathman/porphobi.htm
 
Porphyria Family Village - University of Wisconsin
http://www.familyvillage.wisc.edu/lib_porp.htm

Porphyrin Faeces Testing
http://www.rcpa.edu.au/pathman/porphyr2.htm
 
Dr. Robert J. Desnick - Mt. Sinai - Porphyria DNA Research
http://www.mssm.edu/genetics/

Dr. Kenneth Astrin - Mt. Sinai - Porphyria DNA Research
http://www.mssm.edu/genetics/ *astrin.html
 


Skin Biopsy for Porphyria
http://www.rcpa.edu.au/pathman/skin_bio.htm

Uroporphyrinogen Decarboxylase Red Cell Testing
http://www.rcpa.edu.au/pathman/uroporph.htm



Dietary Information for Porphyrics
 
Dietary Pyramid
http://www.nal.usda.gov:8001/py/pmap.htm

 



Drugs & Porphyria

Antimicrobial Agents in Porphyria
http://www.uct.ac.za/depts/mmi/antibiot/porph.html
 
Dr. Michael Moore's Website-University of Queensland
http://www.uq.edu.au/porphyria/
 
Drug Reaction Feedback
http://www.uq.edu.au/porphyria/porfdbk.htm
 
South African Porphyria Drug List
http://www.uct.ac.za/depts/mmi/jmoodie/porphtml.html#Classification

 



General References
 
American Porphyria Foundation  [**$35.00 Access Fee]
http://www.enterprise.net/apf/
 
Canadian Porphyria Foundation, Inc.
http://www.cpf-inc.ca/
 
CIIN
http://ciin.org
 
Mayo Clinic Health Site
http://www.mayohealth.org/
 
Medscape
http://www.medscape.com/Home/Topics/multispecialty/multispecialty.html
 
National Library of Medicine
http://www.ncbi.nlm.nih.gov/PubMed/
 
US National Library of Medicine
http://www.nlm.nih.gov/


European Porphyria Initiative:
Dr. George Elder
http://www.porphyria.europe.com

Dutch EPP
http://www.epp.info




 


 
Genetics & Porphyria



Genetic Study of AIP
http://ethesis.helsinki.fi/julkaisut/ laa/kliin/vk/mustajoki/molecula.html

Molecular Background of AIP
http://ethesis.helsinki.fi/julkaisut/ laa/kliin/vk/mustajoki/molecula.html

Structure of Porphyrins
http://www-medlib.med.utah.edu/NetBiochem/hi2a.htm
 
Online Mendelian Inheritance in Man
http://www3.ncbi.nlm.nih.gov/Omim/

Understanding Gene Testing
http://www.accessexcellence.org/AE/AEPC/NIH/index.html
 
Your Genes, Your Choices
http://www.ornl.gov/hgmis/publicat/genechoice/index.html



 

This website brought to you by the book...
The Book !
and Porphyria Educational Services
2445 Glen Circle
Grand Forks, ND 58201-5188

For Ordering Information,
Click Here