ABC's Of Porphyria
The Porphyrias - In Depth Review http://www-medlib.med.utah.edu/NetBiochem/hi6.htm
Clinical Manifestations, Diagnosis and Treatment of
Porphyria http://www.medstudents.com.br/metdis/metdis3.htm Cytochrome P-450
http://www.mall-net.com/mcs/p450.html
Metabolic Basis of Porphyrias (Ensminger)
http://www.npac.syr.edu/users/ensmingr/porphtable.html
Metabolic Disorders - Porphyrias
http://www.medstudents.com.br/metdis/metdis3.htm
Names of Porphyrins
http://http://www-medlib.med.utah.edu/NetBiochem/hi2b.htm
NIDDK (Digestive Diseases) Porphyria Website
http://www.niddk.nih.gov/health/digest/
summary/porphria/porphria.htm
Painful Porphyria: Introduction to Deriree Lyon
http://pubs.acs.org/subscribe/journals/
mdd/v04/i04/html/MDD04DeptDiseases.html
Porphyria Pathology (Australia)
http://www.rcpa.edu.au/pathman/porphyri.htm
Porphyrins
http://www-medlib.med.utah.edu/NetBiochem/hi2.htm
Summary of Porphyria Syndromes http://wsrv.clas.virginia.edu/~rjh9u/porphyria.html
Welsh Porphyria Website (Alana Adams)
http://www.dotpharmacy.co.uk/uporphy.html
Chemical Toxins
& Porphyria Biochemical MS & Porphyria www.faseb.org
http://www.ummed.edu/dept/gastro/Fe-Porphyrin.html Chemical Toxins http://www.epa.gov/edrlupvx/Tables/table2.NIEHS.html
Chelation Therapy http://www.mall-net.com/mcs/chela.html Cutaneous Heme Metabolis & Porphyrias http://www.med.nyu.edu/Research/H.Lim-res.htmlhttp://www.ummed.edu/pub/m/mtaubert/FePorphyrin.html Disorders of Porphyrin Metabolism - Dr. Grace Ziem MD http://www.mcsrr.org/factsheets/porphyri.html
http://www.mcsrr.org/factsheets/porphyri.html
Gulf War Syndrome http://www.mcsrr.org/pressreleases/prgws94a.html Heavy Metal Toxicity http://www.ephca.com/metals.htm
Heme Biosynthesis
http://ethesis.helsinki.fi/julkaisut/laa/kliin/vk/
mustajoki/molecula.html
Heme Oxygenase [Dr. Attallah Kappas/ Rockefeller
Laboratory] http://www.rockefeller.edu/labheads/kappas/kappas-lab.html
Hexachlorobenzene and PCT
http://archderm.ama-assn.org/issues/v135n4/ffull/ded8027.html
Metabolic Basis and Characteristics of Porphyria http://www.npac.syr.edu/users/ensmingr/porphtable.html Metallopoprhyrins Chemical Table http://www.porphyrin.net/Porphynet/porphy_metal/periodic_table.html
PCT & Carcinoma (Case Study)
http://www.cdc.gov/mmwr/preview/mmwrhtml/00000293.htm
Porphyrinogens,Porphyrins,and
Porphyrias
http://nordx.mmc.org/testcat/procedure.asp?ProcedureID=30
Porphyria http://www.mall-net.com/mcs/porphyria.html Porphyrias and Haem Synthesis http://www2.kenyon.edu/people/sharpm/welcome.htm
Porphyria and MCS (Thompson)
http://www.environmentalhealth.ca/w97porphyria.html
Porphyria Research [Dr. Sassa - Rockefeller University] http://www.rockefeller.edu/labheads/sassa/sassa-lab.html
Porphyria and Sickle Cell Anemia (Manchester UK)
http://www.rcsed.ac.uk/journal/vol44_2/4420015.htm
Sick Buildings http://www.mall-net.com/mcs/sickbld.html Susceptability to Environmental Chemical [Dr. Wm. E.
Morton M.D. http://vest.gu.se/~bosse/Mercury/abs/morton95a.html
Toxic Hazards http://www.atsdr.cdc.gov/toxfaq.html
Clinical Trials Clinical Trials in Porphyria http://rarediseases.info.nih.gov/ord/wwwprot/menu/dx06111.html Clinical Study of Porphyria Patient on Long Term
Prevention of Attacks http://rarediseases.info.nih.gov/cgi-bin/rare-phy_show?file=pro13187.html Porphyria- Clinical Trials in Preventing Cyclic Attacks
in Women http://rarediseases.info.nih.gov/cgi-bin/rare-phy_show?file=pro11885.html Clinical Study of Heme Arginate in Porphyria http://rarediseases.info.nih.gov/cgi-bin/rare-phy_show?file=pro13185.html Phase I Clinical Trial in Porphyria Using Heme Arginate http://rarediseases.info.nih.gov/cgi-bin/rare-phy_show?file=pro13191.html Clinical Trials Database http://clinicaltrials.gov/ct/gui/c/b Clinical Trials in Porphyria Enzyme Defects http://rarediseases.info.nih.gov/cgi-bin/rare-phy_show?file=pro11888.html
Diagnostic
Testing
24 Hour Urine Porphyria Testing
http://www.rcpa.edu.au/pathman/porphyr4.htm
ALA Urine Testing
http://www.rcpa.edu.au/pathman/5aminola.htm
Blood Cells and the CBC http://www.neosoft.com/~uthman/blood_cells.html
Common Laboratory Tests in Liver Disease http://cpmcnet.columbia.edu/dept/gi/labtests.html Index of Worldwide Porphyria Labs http://www.leeds.ac.uk/ifcc/SD/porph/labindex.html Interpretation of Abnormal Porphyrin Test Results http://www.metametrix.com/articles/artcl_por.htm#TABLE Laboratory Diagnosis in Porphyria http://medic.med.uth.tmc.edu/path/00000884.htm#Dx Liver Function Tests http://www.gastro.com/liverpg/lfts.htm
PBG Deaminase Red Blood Cell Testing
http://http://www.rcpa.edu.au/pathman/porphob2.htm
PBG Synthetase Red Blood Cell Testing
http://www.rcpa.edu.au/pathman/porphob3.htm
PCT [ Porphyria Cutaneous Tarda]- A Complete Overview http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?176100
Red Cell Porphyrin Testing
http://www.rcpa.edu.au/pathman/porphyr3.htm
Toxic Metals and Chemical Induced Porphyrinuria http://www.metametrix.com/articles/artcl_por.htm#TABLE
Porphobilogen Urine Testing
http://www.rcpa.edu.au/pathman/porphobi.htm
Porphyria Family Village - University of Wisconsin http://www.familyvillage.wisc.edu/lib_porp.htm
Porphyrin Faeces Testing
http://www.rcpa.edu.au/pathman/porphyr2.htm
Dr. Robert J. Desnick - Mt. Sinai
- Porphyria DNA Research http://www.mssm.edu/genetics/
Dr. Kenneth Astrin - Mt. Sinai - Porphyria DNA Research
http://www.mssm.edu/genetics/
*astrin.html
Skin Biopsy for Porphyria
http://www.rcpa.edu.au/pathman/skin_bio.htm
Uroporphyrinogen Decarboxylase Red Cell Testing
http://www.rcpa.edu.au/pathman/uroporph.htm
Dietary
Information for Porphyrics Dietary Pyramid http://www.nal.usda.gov:8001/py/pmap.htm Dietary: RDA [Recommended Daily Allowances] http://library.thinkquest.org/10991/rda.html
Vitamins & Minerals http://library.thinkquest.org/10991/vitamins.html#vitamink
Drugs
& Porphyria
Antimicrobial Agents in Porphyria http://www.uct.ac.za/depts/mmi/antibiot/porph.html
Drug Toxicology http://www.kumc.edu/AMA-MSS/study/pharm3_table_alphabetical.htm Dr. Michael Moore's Website-University of Queensland http://www.uq.edu.au/porphyria/ Drug Reaction Feedback http://www.uq.edu.au/porphyria/porfdbk.htm
South African Porphyria Drug List http://www.uct.ac.za/depts/mmi/jmoodie/porphtml.html#Classification SSRI Use and Porphyria http://www.geocities.com/HotSprings/3568/Dr_Preskorn.htm
General
References American Porphyria Foundation [**$5.00 Access Fee] http://www.enterprise.net/apf/ Canadian Porphyria Foundation, Inc. http://www.cpf-inc.ca/ CIIN http://biz-comm.com/CIIN/ Cure Porphyria Organization www.cureporphyria.org/ Mayo Clinic Health Site http://www.mayohealth.org/ Medscape http://www.medscape.com/Home/Topics/multispecialty/multispecialty.html National Library of Medicine http://www.ncbi.nlm.nih.gov/PubMed/ PEGS -
Australian Porphyria Group http://www.crosswinds.net/~fevredream/ PorphyNet http://www.porphyrin.net/Porphynet/porphy_facts/porphyria.html PorphyNet Porphyria Research http://www.porphyrin.net/Users/porphsystems.html Porphyria Research Company http://www.porphyrin.net/Users/porphsystems.html
Tufts University http://navigator.tufts.edu/ US National Library of Medicine http://www.nlm.nih.gov/
Genetics
& Porphyria
Genetic Study of AIP
http://ethesis.helsinki.fi/julkaisut/
laa/kliin/vk/mustajoki/molecula.html
Molecular Background of AIP
http://ethesis.helsinki.fi/julkaisut/
laa/kliin/vk/mustajoki/molecula.html
Structure of Porphyrins
http://www-medlib.med.utah.edu/NetBiochem/hi2a.htm
Genetic Disorders, Databases & Geneology http://habitant.org/genetics.htm Online Mendelian Inheritance in Man http://www3.ncbi.nlm.nih.gov/Omim/
Understanding Gene Testing http://www.accessexcellence.org/AE/AEPC/NIH/index.html Your Genes, Your Choices http://www.ornl.gov/hgmis/publicat/genechoice/index.html
Specific Medical Care Needs for
Porphyrics
Case Management for Home
Infusion
http://www.cmrg.com/ Hematin http://www.integratedhealth.com/hpdspec/hema.html Hematin http://omlc.ogi.edu/spectra/PhotochemCAD/html/hematin.html Medic Alert http://www.medical-id.com/ National Patient Air Travel www.PatientTravel.org Ports & Picc IV Infusion http://www.bardaccess.com/
Nerves &
Neurology
CNS Involvement & Neuropathy
http://www.neuro.wustl.edu/neuromuscular/nanatomy/cns.html
Drugs Toxic to Nerves/Peripheral Neuropathy http://www.ultranet.com/~smith/MedicalAlert.html Evaluation of Peripheral Neuropathy http://www.aafp.org/afp/980215ap/poncelet.html Neuromuscular Porphyria Link http://www.neuro.wustl.edu/neuromuscular/nother/porph.htm
Polyneuropathy Differential Diagnosis http://www.neuro.wustl.edu/neuromuscular/naltbrain.htmlhttp://www.ttuhsc.edu/pages/neuro/ttep/terms.htm
Outreach
Services Americans With Disabilities Act: An Overview http://janweb.icdi.wvu.edu/kinder/overview.htm Americans With Disability Act http://www.usdoj.gov/crt/ada/reg2.html
Center for Patient Advicacy www.patientadvocacy.org Coping With Chronic Illness http://victorian.fortunecity.com/cezanne/518/index.htm
Porphyria Family Village-University of Wisconsin http://www.familyvillage.wisc.edu/lib_porp.htm Social Security - Questions & Answers http://www.nosscr.org/faqind.html Social Security Disability Questions & Answers http://www.nosscr.org/hallfaq.html#01
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