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Porphyria and Medical Links

ABC's Of Porphyria

The Porphyrias - In Depth Review

Clinical Manifestations, Diagnosis and Treatment of Porphyria
Cytochrome P-450

Metabolic Basis of Porphyrias (Ensminger)

Metabolic Disorders - Porphyrias

Names of Porphyrins

NIDDK (Digestive Diseases) Porphyria Website

Painful Porphyria: Introduction to Deriree Lyon

Porphyria Pathology (Australia)


Summary of Porphyria Syndromes

Welsh Porphyria Website (Alana Adams)

Chemical Toxins & Porphyria
Biochemical  MS & Porphyria
Chemical Toxins
Chelation Therapy
Cutaneous Heme Metabolis & Porphyrias
Disorders of Porphyrin Metabolism - Dr. Grace Ziem MD

Gulf War Syndrome
Heavy Metal Toxicity

Heme Biosynthesis mustajoki/molecula.html
Heme Oxygenase [Dr. Attallah Kappas/ Rockefeller Laboratory]

Hexachlorobenzene and PCT
Metabolic Basis and Characteristics of Porphyria
Metallopoprhyrins Chemical Table

PCT & Carcinoma (Case Study)

Porphyrinogens,Porphyrins,and Porphyrias
Porphyrias and Haem Synthesis

Porphyria and MCS (Thompson)
Porphyria Research [Dr. Sassa - Rockefeller University]

Porphyria and Sickle Cell Anemia (Manchester UK)
Sick Buildings
Susceptability to Environmental Chemical [Dr. Wm. E. Morton M.D.

Toxic Hazards

Clinical Trials
Clinical Trials in Porphyria
Clinical Study of Porphyria Patient on Long Term Prevention of Attacks
Porphyria- Clinical Trials in Preventing Cyclic Attacks in Women
Clinical Study of Heme Arginate in Porphyria
Phase I Clinical Trial in Porphyria Using Heme Arginate
Clinical Trials Database 
Clinical Trials in Porphyria Enzyme Defects

Diagnostic Testing

24 Hour Urine Porphyria Testing

ALA Urine Testing
Blood Cells and the CBC
Common Laboratory Tests in Liver Disease
Index of Worldwide Porphyria Labs
Interpretation of Abnormal Porphyrin Test Results
Laboratory Diagnosis in Porphyria
Liver Function Tests

PBG Deaminase Red Blood Cell Testing

PBG Synthetase Red Blood Cell Testing
PCT [ Porphyria Cutaneous Tarda]- A Complete Overview

Red Cell Porphyrin Testing
Toxic Metals and Chemical Induced Porphyrinuria

Porphobilogen Urine Testing
Porphyria Family Village - University of Wisconsin

Porphyrin Faeces Testing
Dr. Robert J. Desnick - Mt. Sinai - Porphyria DNA Research

Dr. Kenneth Astrin - Mt. Sinai - Porphyria DNA Research *astrin.html

Skin Biopsy for Porphyria

Uroporphyrinogen Decarboxylase Red Cell Testing

Dietary Information for Porphyrics
Dietary Pyramid
Dietary:  RDA [Recommended Daily Allowances]

Vitamins & Minerals


Drugs & Porphyria

Antimicrobial Agents in Porphyria
Drug Toxicology
Dr. Michael Moore's Website-University of Queensland
Drug Reaction Feedback
South African Porphyria Drug List
SSRI Use and Porphyria


General References
American Porphyria Foundation  [**$5.00 Access Fee]
Canadian Porphyria Foundation, Inc.
Cure Porphyria Organization
Mayo Clinic Health Site
National Library of Medicine
PEGS - Australian Porphyria Group
PorphyNet  Porphyria Research
Porphyria Research Company

Tufts University
US National Library of Medicine


Genetics & Porphyria

Genetic Study of AIP laa/kliin/vk/mustajoki/molecula.html

Molecular Background of AIP laa/kliin/vk/mustajoki/molecula.html

Structure of Porphyrins
Genetic Disorders, Databases & Geneology
Online Mendelian Inheritance in Man

Understanding Gene Testing
Your Genes, Your Choices

Specific Medical Care Needs for Porphyrics
Case Management for Home Infusion
Medic Alert
National Patient Air Travel
Ports & Picc IV Infusion


Nerves & Neurology

CNS Involvement & Neuropathy
Drugs Toxic to Nerves/Peripheral Neuropathy
Evaluation of Peripheral Neuropathy
Neuromuscular Porphyria Link

Polyneuropathy Differential Diagnosis

Outreach Services
Americans With Disabilities Act:  An Overview
Americans With Disability Act

Center for Patient Advicacy
Coping With Chronic Illness
Porphyria Family Village-University of Wisconsin
Social Security - Questions & Answers
Social Security Disability Questions & Answers