Please take your time to read this
site from beginning to end. But before you proceed, we
ask that you take a few moments to read this important
information. Once you agree, just click on the links to
the left to find the information you need or request.
The information found on the Porphyria Educational
Services Web Site is just information on the disease
porphyria and it's associated symptoms, and treatment. It
also provides links to other porphyria sites.
The Porphyria Educational Services website is not intended
as a substitute for the medical advice of physicians. The
diagnosis and treatment of the porphyrias are based upon
the entire encounter between a physician and the
individual patient. The diagnosis can not be
ascertained by just reading this website.
Specific recommendations for the confirmed diagnosis and
treatment of any individual must be accomplished by that
individual and their personal physician, acting together
cooperatively. Porphyria Educational Services in no way
shall be held responsible in part or whole for any
injury, misinformation, neglience, or loss incurred by
In using the Porphyria Educational Services
Web Site you also agree not to hold liable any
contributor of information to this Web Site.
Privacy Statement Porphyria Educational Services respect your
right to privacy and we understand that guests to our
website Guestbook need to be in control of their
personal information. We also want to present information
on our website that is tailored to the needs of our
visitors. For this reason, we invite you to sign our
We will use
the personal information you share with us in the
Guestbook to ensure the services that we provide
you are tailored to your
current and future needs.
The PES website Guestbook is NOT available
for viewing by anyone with an Internet connect. Only PES
can view this and only PES may use this information
to alert you to answer any of your requests, send
updated information, and new services.
provide your e-mail address or other personal information
be assured that PES does NOT
sell or give out such information to any other list
holders, companies or individuals.
kept of server information just for identification
verification purpose should illegal hacking be attempted.